Home | Professional Who cares for the carers? Written by: Chris Barber | Published: 15 February 2016 Holistic care for carers can be provided through carer champions in GP practices This is very interesting. I am a Parent/Carer for my son with Severe Learning Disabilities, ... Posted by: Dorothy Jump, 24/02/2016 Read More There are an increasing number of ‘champions’ for a wide range of health conditions1 and carers’ champions are one of them. They can be based in a number of clinical settings, the more relevant being GP practices and community health centres. They are often the practice nurse or healthcare assistant/support worker. An increasing number of GP practices are asking the practice receptionist to fulfil this role with specific and ongoing training and professional development. Carers’ champions carry out a number of important roles outlined in Box 1.Box 1: Duties of a carers’ championPlease login or register to read the rest of the article and to have access to downloads and comments. What do you think? Leave a comment below or tweet your views to @IndyNurseMag This material is protected by MA Healthcare Ltd copyright. See Terms and Conditions. Comments This is very interesting. I am a Parent/Carer for my son with Severe Learning Disabilities, Epilepsy, Challenging behaviour,Autism spectrum disorder was diagnosed last year for this with constant challenges due to his behaviour he is 42 yrs. I think more needs to be done in the surgeries to support Carers yo many action plans and not enough putting in to the issues may be Carers themselves news to control this as they have a better understanding for the issues they have rather than someone in the health profession itself. I attend many meetings to support issues as a Carer myself I campaign and I am passionate in what I do and do get results. Listen, learn from what Carers tell you monitor there needs and outcomes on your systems and then you may learn more. I recently have been through a crisis with my sons health and I hit an appalling situation to see what happens and I was shocked that communication is appalling and attitudes and connections between departments is a shambles one from the other has no idea this links to people with Learning disabilities, Autism the vulnerable people in life more needs toward there care is needed and care that fits around them not what the system thinks it should be they are different to the needs you and I need. I complained to PALS, NHS England and Health watch about there criteria in the way they communicate and treat this service yes I did get results but there are still flaws out there. It's like my son he likes routine he is getting to the point he will not go to appointments so these get missed and so does his health related issues because the system does not fit his needs to support him more specialist care is needed this did happen at one point that a specialist would visit his Day centre but they split the role and he has to visit them at hospital appointments which this can be impossible GPs are routine to there needs so my son does not fit in with there criteria. My son suffers more with his anxiety issues if this happens so causing use more stress I feel we talk to the wall at times is anyone listening out there which is my point above. So again read this and Listen, and remember this is happening out there to Carers and the people they care for. Thank you Posted by: Dorothy Jump, 24/02/2016 Report this Comment Newsletter Sign up to the newsletter Communication Preferences: To understand how we process, use & safeguard your data, please see our Privacy Policy Thank you for registering for Independent Nurse. In addition to this service, Independent Nurse and other parts of the Mark Allen Group may like to contact you about related products, events, surveys, special offers and services that we think you might enjoy. If you would prefer not to receive these communications, please indicate by ticking the boxes: Do Not contact by email Do Not contact by post Do Not contact by telephone From time-to-time we would like to contact you with business focused messages, special offers and information from other partner organisations that we think may be of interest to you. These will always be relevant and you can opt out at any time. If you would prefer not to receive communications of this nature, please indicate: Do Not contact by email Do Not contact by post Do Not contact by telephone I accept the Independent Nurse T&C's © Copyright 2020 MA Healthcare Ltd Privacy Policy | Terms & Conditions | Advertise | Contact Us | Contribute | Subscribe | Archive
Who cares for the carers? Written by: Chris Barber | Published: 15 February 2016 Holistic care for carers can be provided through carer champions in GP practices This is very interesting. I am a Parent/Carer for my son with Severe Learning Disabilities, ... Posted by: Dorothy Jump, 24/02/2016 Read More There are an increasing number of ‘champions’ for a wide range of health conditions1 and carers’ champions are one of them. They can be based in a number of clinical settings, the more relevant being GP practices and community health centres. They are often the practice nurse or healthcare assistant/support worker. An increasing number of GP practices are asking the practice receptionist to fulfil this role with specific and ongoing training and professional development. Carers’ champions carry out a number of important roles outlined in Box 1.Box 1: Duties of a carers’ championPlease login or register to read the rest of the article and to have access to downloads and comments. What do you think? Leave a comment below or tweet your views to @IndyNurseMag This material is protected by MA Healthcare Ltd copyright. See Terms and Conditions. Comments This is very interesting. I am a Parent/Carer for my son with Severe Learning Disabilities, Epilepsy, Challenging behaviour,Autism spectrum disorder was diagnosed last year for this with constant challenges due to his behaviour he is 42 yrs. I think more needs to be done in the surgeries to support Carers yo many action plans and not enough putting in to the issues may be Carers themselves news to control this as they have a better understanding for the issues they have rather than someone in the health profession itself. I attend many meetings to support issues as a Carer myself I campaign and I am passionate in what I do and do get results. Listen, learn from what Carers tell you monitor there needs and outcomes on your systems and then you may learn more. I recently have been through a crisis with my sons health and I hit an appalling situation to see what happens and I was shocked that communication is appalling and attitudes and connections between departments is a shambles one from the other has no idea this links to people with Learning disabilities, Autism the vulnerable people in life more needs toward there care is needed and care that fits around them not what the system thinks it should be they are different to the needs you and I need. I complained to PALS, NHS England and Health watch about there criteria in the way they communicate and treat this service yes I did get results but there are still flaws out there. It's like my son he likes routine he is getting to the point he will not go to appointments so these get missed and so does his health related issues because the system does not fit his needs to support him more specialist care is needed this did happen at one point that a specialist would visit his Day centre but they split the role and he has to visit them at hospital appointments which this can be impossible GPs are routine to there needs so my son does not fit in with there criteria. My son suffers more with his anxiety issues if this happens so causing use more stress I feel we talk to the wall at times is anyone listening out there which is my point above. So again read this and Listen, and remember this is happening out there to Carers and the people they care for. Thank you Posted by: Dorothy Jump, 24/02/2016 Report this Comment Newsletter Sign up to the newsletter Communication Preferences: To understand how we process, use & safeguard your data, please see our Privacy Policy Thank you for registering for Independent Nurse. In addition to this service, Independent Nurse and other parts of the Mark Allen Group may like to contact you about related products, events, surveys, special offers and services that we think you might enjoy. If you would prefer not to receive these communications, please indicate by ticking the boxes: Do Not contact by email Do Not contact by post Do Not contact by telephone From time-to-time we would like to contact you with business focused messages, special offers and information from other partner organisations that we think may be of interest to you. These will always be relevant and you can opt out at any time. If you would prefer not to receive communications of this nature, please indicate: Do Not contact by email Do Not contact by post Do Not contact by telephone I accept the Independent Nurse T&C's © Copyright 2020 MA Healthcare Ltd Privacy Policy | Terms & Conditions | Advertise | Contact Us | Contribute | Subscribe | Archive