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Who cares for the carers?

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Holistic care for carers can be provided through c Holistic care for carers can be provided through carer champions in GP practices

There are an increasing number of ‘champions’ for a wide range of health conditions1 and carers’ champions are one of them. They can be based in a number of clinical settings, the more relevant being GP practices and community health centres. They are often the practice nurse or healthcare assistant/support worker. An increasing number of GP practices are asking the practice receptionist to fulfil this role with specific and ongoing training and professional development. Carers’ champions carry out a number of important roles outlined in Box 1.

Box 1: Duties of a carers’ champion

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This is very interesting. I am a Parent/Carer for my son with Severe Learning Disabilities, Epilepsy, Challenging behaviour,Autism spectrum disorder was diagnosed last year for this with constant challenges due to his behaviour he is 42 yrs. I think more needs to be done in the surgeries to support Carers yo many action plans and not enough putting in to the issues may be Carers themselves news to control this as they have a better understanding for the issues they have rather than someone in the health profession itself. I attend many meetings to support issues as a Carer myself I campaign and I am passionate in what I do and do get results.
Listen, learn from what Carers tell you monitor there needs and outcomes on your systems and then you may learn more. I recently have been through a crisis with my sons health and I hit an appalling situation to see what happens and I was shocked that communication is appalling and attitudes and connections between departments is a shambles one from the other has no idea this links to people with Learning disabilities, Autism the vulnerable people in life more needs toward there care is needed and care that fits around them not what the system thinks it should be they are different to the needs you and I need. I complained to PALS, NHS England and Health watch about there criteria in the way they communicate and treat this service yes I did get results but there are still flaws out there.
It's like my son he likes routine he is getting to the point he will not go to appointments so these get missed and so does his health related issues because the system does not fit his needs to support him more specialist care is needed this did happen at one point that a specialist would visit his Day centre but they split the role and he has to visit them at hospital appointments which this can be impossible GPs are routine to there needs so my son does not fit in with there criteria. My son suffers more with his anxiety issues if this happens so causing use more stress I feel we talk to the wall at times is anyone listening out there which is my point above. So again read this and Listen, and remember this is happening out there to Carers and the people they care for. Thank you
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